This is my first attempt at blogging. Check that, it is my second but the first was obligatory and covered a topic I knew so little about it was almost embarrassing. How much can a football and wrestling coach really enlighten rugby fanatics and families about a tour to Scotland anyway? No, this blog is the first outpouring of something far more meaningful to me, however fun the tour may have been.
I am writing to inform, update, vent, and even possibly inspire. Inspire says I? Well, that sounds a little arrogant so let me qualify the word by saying that I feel "inspired" to write.
"...speaking of beliefs and feelings, is it so hard to believe that God has brought you here?"
- Priest in Confessional from the movie The Boondock Saints
So here I am, feeling in some way inspired to write about myself. Any why? The purpose is layered deep but at least the surface is perfectly clear. In recent months I have experienced some significant health issues, which for those of you that know me well is nothing new. I have dealt with significant health problems in the past, but the game has changed and now it is time to inform.
In April of 1999, I was diagnosed with a blood disease called Aplastic Anemia, an auto-immune disease that prevents the body from making enough blood. I have undergone varying degrees of immuno-suppresive therapy that has allowed me to function relatively normally for almost 12 years. During that time my blood counts have spiked and dipped, but very rarely has it affected my quality of life.
On November 1, 2010 the game changed. After a moderately successful day of teaching middle schoolers, I ventured 25 miles south to coach a JV football game. During the game, I felt the onset of illness but was experiencing flu-like symptoms and thought if I could make it home I could sleep it off. To make a long story short, the next day I was hospitalized with liver and kidney failure caused by a blood clot in a vein in my liver. After a week of hospitalization, a team of doctors, and a myriad of tests, I was diagnosed with another equally rare blood disease called Paroxysmal Nocturnal Hemoglobinuria or PNH. This gem of a disease causes the precious few red blood cells I have to break down prematurely and cause clots in my veins. The two diseases are related in that patients with Aplastic Anemia are more likely to have PNH, although there is no cause determined for either in my case.
That is a lot of medical B.S. and if you want more feel free to follow the links, but here is what it has meant to me since that day in November. I haven't worked since. I guess is pays to only take a day or two of sick days per year because when you need them, dammit you NEED them. At first it was the recovery from organ failure but right now my blood counts are critically low and improvement is a waiting game. We are currently relying on bi-weekly blood counts and hoping and praying for improvement. For those of you scoring at home or alone, here are today's counts (Disclaimer for those of you in the medical profession, prepare to break into a cold sweat when you read these):
Platelets: 6000 (normal range is 150,000 to 450,000)
Hemoglobin: 6.1 (normal range is 14 to 18)
Hematocrit: 17.6 (normal range is 42 to 52)
For those of you praying for me, MY normal is not within the normal ranges listed. At best I hover below all three, but I function normally at such levels and that is what we pray for in the Porteo-house. I am on separate drugs for each disease, none of which have any immediate side effects and long term side effects are much like other drugs where organ function is the major concern. Blood counts are the primary indicator of any changes in my condition and we watch them very closely.
Bored yet? I am. Reciting this information is a little redundant for me, but I know that so many of you care about me and my family. This information is to help you understand exactly what is going on, how I am doing with it, and how you believers can pray for us.
As for how I feel, I feel remarkably well. The counts say otherwise but I have a very hard time telling the difference between healthy counts and low counts in my body. Change is often gradual and my body adjusts slowly as the counts either increase or decrease. That is why blood draws are so important for measuring progress. I had great hopes of returning to teach middle school on Jan. 3 but I am protecting the stress level of my day in hopes of my counts improving. The new return date is now Jan. 31 pending improvement.
I suppose I should say something inspirational, motivational, or encouraging for all of you that dared to read this entire post. Let me leave you with a couple things I have learned so far from this ordeal.
Psalm 46:10 says, "Be still and know that I am God..." The literal and all too real translation for me is, "Be still, or I let you get your ASS beaten, and THEN you'll know that I am God!"
On a serious note, 1 Timothy 4:8 says, "Physical training is of some value, but godliness has value for all things, holding promise for the present life and the life to come." Our physical bodies are SO secondary to the health of our spiritual lives, today and tomorrow.
Brian
Wow...we are holding you guys up in our prayers. It would be awesome to know what God's purpose is in the things He throws our way. Praying for a miracle.
ReplyDeleteWe have been, are and will be praying for you and your family, Brian. We often don't understand what God is doing with our lives, but we always know we can trust Him. God of the universe is also God of platelets and hemoglobin, and He is intimately at work in and through you. He who has begun a good work in your life will complete it!
ReplyDeleteBrian, Kelly, Grace and Francis: You are always in our prayers. You guys have been through so much and continue on with utter determination! Press on friends. Deep breaths. Breath God in, He will be there. (Not that you need all this motivational babble, but, what can I say...YOU INSPIRED!) If there is ever anything we can do let us know. We are praying. Here is to more quality blood! Love you guys! Em and Curt
ReplyDeleteYou are an amazing man!!! We continue to pray for you and your family!
ReplyDeleteWishing you victory and boundless joy.
ReplyDeleteWondering, trusting and hoping with you, Brian. You'll be in our thoughts and prayers -- cj and lance
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